This EB Awareness Week, your gift goes twice as far.
The Oros family is matching every gift to EB Research Partnership, dollar for dollar, up to $100,000.
Donate today to help unlock the full match and accelerate progress for EB.
The Oros Family Match
Every gift doubled, up to $100,000
$12,146raised toward the match
Last updated Oct 26 at 9 AM ET
This organization is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law.
( EB Awareness Week 2026 )
My hope for
EB is...
less pain.
Your gift fuels the research. Your words remind us why. Finish the sentence and add your hope to a living portrait of the EB community.
Add your hope →
Takes less than a minute.
( The Oros Family Match )
Meet Charlie
and his family.
Charlie Oros lives with EB. This EB Awareness Week, his family is matching every gift up to $100,000.
Their hope is to rally the EB community to give this week and beyond, so more funding reaches vital, innovative research for Charlie and everyone living with EB.
Every gift doubled. 100% of your donation goes straight to EB research.