This organization is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.
A monthly mission.
A lifetime of impact.
Each month we'll launch a new Give Back opportunity with unique ways to participate, meaningful tributes, and special incentives. Whether you're honoring an EB warrior, celebrating a milestone, or simply showing up because you care, thank you so much for your support!

Our June Give Back:
Join Fragile Wings Fierce Hearts in honoring Hallie Grace on her golden birthday
Hallie Grace holds a forever place in our hearts 🦋
On June 5, her golden birthday, we are launching our first Fragile Wings Fierce Hearts Give Back in her honor. To celebrate her from afar, our team will gather in Wisconsin on June 26 to release butterflies in her memory. Between now and June 19, you can purchase butterfly releases in Hallie's name.
Every dollar raised goes directly to EB Research Partnership (EBRP) to fund research for a cure for Epidermolysis Bullosa.


