The clock is ticking.
We’re speeding up the science.
Every gift to EB Research Partnership will be matched dollar-for-dollar, doubling your impact until the $1,000,000 match is achieved.
100% of your donation goes directly toward research, treatments, and finding a cure, thanks to our angel donors who underwrite our operations.
What you’ve already made possible:
$80M
Raised for EB research
Across 189 projects, powered by people like you
3
FDA-approved EB treatments
Turning research into real options for families
25X
More active EB clinical trials
Progress accelerated by this community
About
Dr. Jeff Heddles
Dr. Jeff Heddles is a longtime supporter and advocate of EB Research Partnership. He first learned about Epidermolysis Bullosa (EB) through the Pearl Jam community, after noticing a young boy onstage wrapped in bandages. Inspired to help accelerate treatments and a cure, Jeff became a major donor and has since launched multiple matching campaigns to expand EBRP’s impact, including the Matter of Time $1 Million Match. A retired chiropractor and lifelong musician based in Chicago, he also supports music education initiatives that empower youth.
“Matter of Time captures what I’ve come to believe deeply. Progress happens when people show up, again and again, by refusing to look away. And we can see that progress happening. This match is my way of transforming a moment of attention into real momentum, fueling the research that can deliver a cure for EB and showing how EBRP’s model can accelerate breakthroughs for thousands of other rare diseases. To every family living with EB, you are not alone. And to anyone who’s been watching this movement from the sidelines, I hope this makes it clear. The work is real, the momentum is here, and together we can push it forward faster.” - Dr. Jeff Heddles
